Temporal Trends in the Completeness of Epidemiological Variables in a Hospital-Based Cancer Registry of a Pediatric Oncology Center in Brazil
The present study aimed to examine the temporal trends in the completeness of epidemiological variables from a HbCR of a reference center for pediatric oncology in Brazil.
The present study has some limitations. Firstly, the study was conducted at a single pediatric oncology hospital in a state in the Southeast Region of Brazil, which may limit the generalizability of the findings to other settings. Secondly, all the analyses reported are based upon secondary cancer data, and, as we know, inherent to all health information systems is the issue of missing and incomplete data. Thirdly, while the hospital-based cancer registry (HbCR) provides valuable information about the quality of care provided, it may not reflect the entire regional or national cancer epidemiology. Nonetheless, this research addresses a topic of increasing epidemiological relevance and might help elucidate gaps in HbCRs across the world, mainly in middle-income-countries. Finally, the present study draws attention to the importance and relevance of complete and reliable data in HbCRs. When data follows the principles of accuracy, completeness, conformity, punctuality, consistency, and integrity, some actions become even more efficient; for example, accurate and reliable decision-making by healthcare professionals and clinicians can be guaranteed by the good management of data quality.
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